Doctor Day

We spent most of Thursday up at Primary Children's for some quality time with the medical professionals in our life. It's pretty sad when most of the time I get to spend with my husband involves "dates" to the hospital. Anyway, E barely passed her swallow study. She protected her airway well enough, but is still working on perfecting her technique. Her cardiologist was ready to move the tube up to her stomach and transition her back to oral feeds, but then she checked the chest xray. E's lungs are all gunky again, possibly from aspirating stomach acid from all her throwing up. So, the tube stays firmly planted in her intestines (well, until she chooses to pull it out again--last Saturday's "date" was to the ER to have it replaced). The good news is that we can begin trying to get her to take a bottle with a small amount of thickened formula. Other updates--her vocal cord is still paralyzed and her oxygen levels are lower than we would like. She's going in for a sedated ecocardiogram at the beginning of April to check on her heart function. It looks like her second surgery may have to happen sooner rather than later, but we'll see. She needs good lung function for the next surgery to be successful, so we really hope her lungs begin to clear up soon. Until then, I get to practice patience some more. I guess I still haven't quite learned that lesson yet!