Bumbo

Look, no more oxygen tube as of last Wednesday! You can finally see Ellie's pretty face. She continues to have some issues with retching after her surgery and has decided that sleeping is not one of her hobbies. But, she is so much fun to have around! Our other exciting news is that we can begin to take her out. She's even ok to travel this summer! Ellie is about a month behind in her motor development, but she is getting stronger. The "Bumbo" we borrowed from her aunt is helping.

Big brother found better uses for the "Bumbo." He regularly wears it as head gear.

This picture was taken in the hospital after the Nissen. The dressing surrounds her button, so you can't see it very well. There's a tube we hook into the notch in the button and then we just pump her formula in.

Post Nissin

Ellie is doing well following her surgery. We only had 1 night in the PICU. Now, she is back upstairs in the same room we had just over a week ago! I feel like we never escaped! The surgery she had is called the "Nissin." The surgeon wrapped the top of her stomach around her esophagus and stitched it so that food can (eventually, we hope) go down, but nothing can come back up. We feed and burp her through a "second bellybutton" in her stomach. This means no more feeding tube through her nose--wahoo! I'll post pictures when I get a chance. She should be coming home on Saturday with no plans to return until she is 2-4 years old. Normal life, here we come!