Monday, February 23, 2009
Friday, February 13, 2009
Progress!!!
E went to the cardiologist on Wednesday morning. We had to be up at Primary Childrens by 8:30 a.m. (that's a 30 min. drive without traffic). I got up at 6:30 a.m. and even without a shower, we still arrived late! This baby thing takes awhile. Once we finally loaded up the feeding pump, the oxygen tank, the car seat, and the diaper bag and were headed out the door, she had a messy diaper! The good news is that we got to come home from the hospital without the oxygen!!! Her lungs are clear and her heart function is fine (well, as fine as can be with only a 2 chamber heart). She is up to 8 lbs., 14 oz. and is starting to look less fragile. Yay!
KD is such a wonderful husband! I was feeling mom guilt about my baby care oopsies. He helped me feel better. When we were leaving for E's appointment, he hooked up the portable oxygen tank for me. When I checked it, I found that he had actually connected the portable tank to the big stationary tank on accident. The baby's tubing was just dangling from her car seat! At least I'm not alone in my lack of nursing skills. Please pray that our baby survives her parents!
KD is such a wonderful husband! I was feeling mom guilt about my baby care oopsies. He helped me feel better. When we were leaving for E's appointment, he hooked up the portable oxygen tank for me. When I checked it, I found that he had actually connected the portable tank to the big stationary tank on accident. The baby's tubing was just dangling from her car seat! At least I'm not alone in my lack of nursing skills. Please pray that our baby survives her parents!
Friday, February 6, 2009
Where's the Nurse?
We are slowly adapting to having E home. I can now move more freely about the house while toting the feeding pump & pole, bouncing the baby and kicking the oxygen tubing out of the way of obstacles. Of course, I can only go 50 ft. in any direction from the oxygen tank (that's how long the tubing is) but that's good enough for me! I can't make it downstairs to enforce the 1/2 hour-only video game rule, but there's no complaining from the kiddos!
I will admit that I really miss the nice nurses at the hospital. It's a miracle that our baby is still doing fairly well in spite of her mother's oopsies with the medical paraphenalia. In my sleep filled days, I was a responsible person. No more! So far, I have broken the feeding pump once, given her too much milk straight into her intestines, and starved her for 4 hours because I didn't have the pump set to alarm when her bag-o-milk was empty. Today I took her to the pediatrician for her synagis (RSV preventative) shot. It took me a good 20 minutes to pack up her stuff and get the portable oxygen tank hooked up. After about 15 minutes of baby crying post shot, I checked the tank only to find that I had never turned it on! I don't think I will pursue a career in nursing.
The good news is that E is up to 8 lbs., 9 oz. She is starting to fill out and look like a normal baby. She continues to throw up a few times each day. The GI doctor is at a loss as to why she is doing this. Her food bypasses her stomach, so we're not sure what is going on. We took her back to the hospital Wednesday for an x-ray to see if maybe her feeding tube was in the wrong place. Everything was fine there. They changed her formula today to see if that will help. We'll hope for the best!
I will admit that I really miss the nice nurses at the hospital. It's a miracle that our baby is still doing fairly well in spite of her mother's oopsies with the medical paraphenalia. In my sleep filled days, I was a responsible person. No more! So far, I have broken the feeding pump once, given her too much milk straight into her intestines, and starved her for 4 hours because I didn't have the pump set to alarm when her bag-o-milk was empty. Today I took her to the pediatrician for her synagis (RSV preventative) shot. It took me a good 20 minutes to pack up her stuff and get the portable oxygen tank hooked up. After about 15 minutes of baby crying post shot, I checked the tank only to find that I had never turned it on! I don't think I will pursue a career in nursing.
The good news is that E is up to 8 lbs., 9 oz. She is starting to fill out and look like a normal baby. She continues to throw up a few times each day. The GI doctor is at a loss as to why she is doing this. Her food bypasses her stomach, so we're not sure what is going on. We took her back to the hospital Wednesday for an x-ray to see if maybe her feeding tube was in the wrong place. Everything was fine there. They changed her formula today to see if that will help. We'll hope for the best!
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