E was supposed to come home today, but she's still at the hospital. The doctors say she will come home tomorrow if all goes well. She has turned a corner--her resting heart rate has come down and her oxygen levels are higher. She still can't maintain a good oxygen level on her own for an extended period of time, but she is getting better. The best part is that she actually looks and acts more comfortable now. She can be awake without crying the whole time. I am so relieved!!! We did find out that her left vocal cord is paralyzed. This should get better on its own but it may take months. E will have her feeding tube into her intestines left in for 6 weeks before they will reevaluate the possiblity of feeding her orally since she is at such a high risk for aspiration into her lungs. Her right lung still has an area that is partially collapsed, but that seems to be slowly improving as well. There is, however, no hope for a cure for her hairstyle. Her hair has grown longer and has some cowlicks the size of Texas in the back. It sticks straight up almost everywhere. I'll post a picture when I get a chance.
3 comments:
Wow, I can't believe all you've been through. You are such a strong, faithful lady and such an example for me. E's a fighter--she's got too much stubbornness in her genes not to be!!
That was said with love, of course... ;)
Are you home? What equipment and medications do you have to have with you? We continue to pray for all of you!
Love you lots!
Post a Comment